I have every intention of writing a more detailed article in the future on this, but feel compelled to give a response to a tweet and so will do so here:
@TheKidsDoctor - I do disagree. We weighed up our options and for approx $1,000 one off fee and then just $125 a year it seemed a very cost effective 'insurance'. As you say you do get the blood screened when they receive it and so have peace of mind at that time.
Perhaps somewhere between 5 - 8 years of age (by which time most of the 'feared diseases' that could be cured with this technology would have been discovered/ manifested), we could then decide whether or not to continue with the storage and I believe at that time we can donate to medical research or if the system allows public donation.
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